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Showing posts from February, 2012

Chromosome 13 Deletion

I have lost a lot of sleep over the last 6 months with everything that has been going on with Violet, but the last couple of nights I can barely sleep at all. First, I want to focus on the great blessings that we have right now. Violet is done with chemotherapy and her labs yesterday showed that all of her counts have almost fully recovered. This means that active treatment is completely over. There are no more weekly port accesses and blood tests! And, chemotherapy was very successful. Violet's ophthalmologist said that it was one of the best responses to chemotherapy that he has ever seen. That is so much to be grateful for. Violet's eye was saved (though we won't know exactly what kind of vision she will have for some time) and that in itself is amazing. 20 years ago, medicine wasn't anywhere close to where it is today for Retinoblastoma and her eye would have needed to be removed immediately. Thankfully, that was avoided. Another wonderful thing to report is Vio