Violet Brielle Spataro

Last Wednesday, Violet had her EUA (exam under anesthesia). We had a 12:30 check in time which is a later time than we like because Violet cannot eat anything before her procedure. Then, it turned out that the surgery before hers ran late, so she was not taken back to start until just after 4pm. Poor little girl went all day without being able to eat. We were obviously not happy, but there was nothing we could do. We just did everything we could to keep her occupied and distracted as much as possible. She handled it all very well up until the last hour or so and then she was having a hard time. After her EUA we were told everything looked as good as they had expected. No new tumors and the much regressed tumor in her left eye is still on the optic nerve, but it is inactive. Both her oncologist and ophthalmologist agree that no more chemotherapy will be done after this month. Violet has her next EUA scheduled for the first week in February to monitor. The next day, my mom and I too...

December was full of blessings for our family. Celebrating Violet's birthday and Christmas were very welcome distractions for us. While Violet's blood counts were down more than up, we were still able to be with family because thankfully no one was sick or had a cold. It was so wonderful to be able to dress her up, take her out and see the enjoyment on her face! excited to see Santa ... then a little bored haha not sure what to think of Santa yet I love that Santa gave Violet sweet cuddles opening presents! trying to figure out this ribbon this is fun! getting help from her cousins playtime! We did have an fever scare the weekend before Christmas. Whenever a child going through chemotherapy gets a temperature over 100.5 it means a trip to the ER to make sure there is no infection. With a port-a-cath like Violet has, there is always risk, and so it scared us, but thankfully after they checked her ANC level and found that it was not severely low, they felt co...