Little Miracles

This sweet little girl. She continues to amaze us and inspire us every single day. What a huge blessing we have in Violet. There is just so much to be grateful for and not a day goes by that we take for granted. 

Violet has had her port-a-cath surgically removed and life after the port-a-cath is amazing! Can I just share with you that Violet was running around playing just a few short hours after surgery? It was as though she knew she was free from it and I think our happiness in reaching this day just seeped into her. We can pick her up under both arms without worry of dislodging a device in her chest. It's wonderful! Josh yearned for the day when he could lift Violet up into the air (like many parents do on a daily basis without thought) and now he can and does often! 

The concern over Violet's chromosome 13 deletion and the developmental/physical impairments that we were told she may have ... they are not an issue. Violet is walking, climbing, talking up a storm and has amazing coordination. She can use an iPad better than some adults! :) And, she just has such a good little heart. She loves to smile and say hi to everyone we meet.

Violet does have a major block in vision in her left eye from the remaining inactive tumor. Her oncologist is saying she may only have some peripheral vision left in that eye but only time will tell. Even still, she can manipulate all of her toys requiring good hand eye coordination, pick up the tiniest piece of anything she may see and just do everything without any sign of lack of sight.

The last EUA (Exam Under Anesthesia) Violet had was in June and it showed no recurrence! Violet's medical team said that with a case like hers where she had tumors so young it is rare that she has not developed more by this time. To God be the glory!

Violet's next EUA is scheduled for September so she has graduated to every 3 months now. We have come from every 4 weeks to every 3 months and, wow, we are so thankful for that. 

Hug and kiss your children as many chances as you get. Tell them how much you love them more times than you can count. They are truly our little miracles and they need to know it and feel it!

Thank you all so much for your continued prayers for our Violet and support for our family. 

Every EUA that goes by without recurrence, the chances drop for recurrence. Violet's ophthalmologist said to us, "I don't know what you are doing, but keep on doing it!" 

We are believing, we are trusting and we are praying.