Violet Brielle - Surviving Retinoblastoma

Violet has her next EUA this Wednesday, September 25th. We are awaiting details of our check-in time and hoping that it is an early one. They will also be performing an ERG while Violet is under anesthesia. This will be the very first time they have done this and we are praying for a miracle in her vision!

We are so grateful for everyone that has been kindly following Violet's story and supporting us along the way. We will always continue to share here, but we would also like to invite you to Violet's official Facebook page that has been made public. We would love to have you all join us for more frequent updates, photos, information and prayer.

Here: Violet Brielle - Surviving Retinoblastoma

Please feel free to share Violet's page as well!

Thank you all so much for your prayers & love.

Comments

Please Join Us In Prayer - CT Scan Tomorrow

I just received the call from the hospital with Violet's appointment time. We will be checking in at 9:30 AM at Seattle Children's Hospital. They let me know the procedure will take approximately 1.5 hours and then recovery from anesthesia will be a few hours. These will be the tests that tell us everything about the stage of cancer. We would love for the tumor to just be gone! If that is not the case, we want to hear that it has not spread anywhere else at all. We want to hear that Violet's life will be saved, her eye will be saved and her sight will be restored. There is a beautiful prayer that went out for Violet by email. We do not even know the wonderful man who wrote it but I thank God for him. The prayer was forwarded to me and I want to share it below: As you have said a personal prayer for the benefit of Violet, lets also come to collective agreement in Prayer for her comfort, healing and above all God's Glory ... Father God, Maker of all things good, c...

Violet's Port-a-cath Surgery

We just made it home from Seattle Children's Hospital. Violet's surgery was successful and lasted almost 2 hours. Then, she was in recovery for another 2.5 hours. The first thing we were told when the anesthesiologist and doctor came in was that it took a little longer than expected because they had a hard time finding a vein for the IV. Our poor little baby had her hands, wrists and feet poked and when they could not get any of those to work they ended up shaving some of her hair and getting the line in on her scalp by her temple. My eyes quickly welled up with tears with the news but I then took a deep breath and tried to focus on the fact that she was awake and well ... something to be very grateful for. The doctor let us know that the port was inserted by 2 incisions, one in the neck and one in the chest on her right side. There are dissolvable stitches in place on the skin and underneath the skin as well. The port is stitched into the muscle of her chest wall and the li...

Violet's MRI

The day after Violet's exam under anesthesia she was scheduled to begin her next round of chemotherapy. My mom and I went to her scheduled appointment which has always gone like this: labs, appointment with her oncologist and then the chemotherapy infusion. On this day, we were told during her appointment that her ANC had not come up from the previous week so unfortunately, Violet's chemotherapy had to be postponed. Her ANC was in the 400 range and it needs to be over 700 to begin chemotherapy. I was disappointed that there would be a delay in her treatment, but grateful that Violet could get a couple days of downtime before her next appointment. And, this meant that we could go home now and she would get more playtime with grandma! We had a visit over the weekend with my step-mom and my sister from California and it was much needed family time! It was wonderful to watch Violet enjoying more playtime, love and hugs. We were definitely showered with many blessings from them ...

Violet Brielle Spataro

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