Violet Brielle - Surviving Retinoblastoma

Violet has her next EUA this Wednesday, September 25th. We are awaiting details of our check-in time and hoping that it is an early one. They will also be performing an ERG while Violet is under anesthesia. This will be the very first time they have done this and we are praying for a miracle in her vision!

We are so grateful for everyone that has been kindly following Violet's story and supporting us along the way. We will always continue to share here, but we would also like to invite you to Violet's official Facebook page that has been made public. We would love to have you all join us for more frequent updates, photos, information and prayer.

Here: Violet Brielle - Surviving Retinoblastoma

Please feel free to share Violet's page as well!

Thank you all so much for your prayers & love.

Comments

Please Join Us In Prayer - CT Scan Tomorrow

I just received the call from the hospital with Violet's appointment time. We will be checking in at 9:30 AM at Seattle Children's Hospital. They let me know the procedure will take approximately 1.5 hours and then recovery from anesthesia will be a few hours. These will be the tests that tell us everything about the stage of cancer. We would love for the tumor to just be gone! If that is not the case, we want to hear that it has not spread anywhere else at all. We want to hear that Violet's life will be saved, her eye will be saved and her sight will be restored. There is a beautiful prayer that went out for Violet by email. We do not even know the wonderful man who wrote it but I thank God for him. The prayer was forwarded to me and I want to share it below: As you have said a personal prayer for the benefit of Violet, lets also come to collective agreement in Prayer for her comfort, healing and above all God's Glory ... Father God, Maker of all things good, c...

Violet's MRI

The day after Violet's exam under anesthesia she was scheduled to begin her next round of chemotherapy. My mom and I went to her scheduled appointment which has always gone like this: labs, appointment with her oncologist and then the chemotherapy infusion. On this day, we were told during her appointment that her ANC had not come up from the previous week so unfortunately, Violet's chemotherapy had to be postponed. Her ANC was in the 400 range and it needs to be over 700 to begin chemotherapy. I was disappointed that there would be a delay in her treatment, but grateful that Violet could get a couple days of downtime before her next appointment. And, this meant that we could go home now and she would get more playtime with grandma! We had a visit over the weekend with my step-mom and my sister from California and it was much needed family time! It was wonderful to watch Violet enjoying more playtime, love and hugs. We were definitely showered with many blessings from them ...

Our life in a Bubble

Germophobia: An apprehension concerning germs. Someone who has such a concern is often referred to as a "germophobe". Ok, so I have officially become a germophobe. And, I don't care if there is a negative stigma attached to the term. I have become a germophobe for the safety of our baby. If anyone thinks that I'm the crazy lady at the store because I'm wearing latex gloves ... so be it. Heck, I might even bust out a hospital mask if I feel the need as the cold and flu season arrives. This entire situation has really changed me because I don't care what others think of me anymore as I am living and doing these things to ensure the health of our child. The last 2 visits to the hospital for Violet's blood tests have been a bit tough. Violet is a smart little nugget and she learned very quickly that if a nurse is going for her chest that means something bad is about to happen. So, she is definitely getting upset during her port access (sterilizing the area,...

Violet Brielle Spataro

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